Surviving Teenage Autism
Posted by Health articles on October 29th, 2009
There are numerous books on the shelf of the local bookstore that are survival guides for parents of teens. And for good reason! For both parents and children, the teen years are the most trying. We’ve been there so we remember what it is like (though sometimes it seems as if we’ve forgotten). The changes we tend to focus most of our attention on are the outward ones but it is the inner changes that we all go through that can cause the most distress, regardless of the level of ability or disability. For parents, one of the hardest things to face is the lack of control over the situation. This is heightened for parents of teens with autism as many of these kids mature physically on schedule but clearly they are not emotionally equipped to deal with all that this can bring. This can indeed foster extreme reactions and parents need to be prepared.
This is a little known fact, but approximately one third of teens on the autism spectrum will experience the onset of seizures. Even if the teen has never had any kind of a seizure in his or her life, they can begin at this time of life. Thankfully, these usually end when puberty is over but is can be extremely scary during these years. Obviously, if you notice your child having even tremors you should consult a doctor to see if this might be seizure activity. If it is, there are drugs available to treat it and it should be treated as one result of seizures can be a loss in functioning. And, as we parents of autistic children know, it is devastating to go “backwards” when we have worked so hard to keep our child moving forward as much as possible.
One possible positive affect of these extra teenage hormones is that your autistic child might actually have a growth and development spurt. Again, don’t focus just on the outward changes of your child but keep track of how he or she is doing developmentally. You may even notice a new skill or interest appears when there had previously been nothing! Great – take advantage of it and give your child the opportunity to continue to grow and develop. Monitor any changes in your child and keep in close contact with the professionals in your child’s life so that you can ask questions and pass on information as needed.
If your child is not part of a social skills group before puberty, then this is definitely the time to get him or her involved. Here in San Diego CA we have a number of community resources for people with disabilities. Look around your community and you might be surprised at what you find! Remember to find that delicate balance between what is age appropriate and what your child can handle given their developmental level and experience. Getting suggestions from fellow parents of children with special needs, perhaps through support groups, is the best way to quickly find these opportunities and get involved.
Puberty and the teen years are difficult for anyone. When you have a disability it is even more so. Take advantage of people and resources in your community – reach out and give your child the benefit of what is in his or her own backyard. Focus on transitioning from child to young adult and consider what your child needs to learn to be safe. Be patient – this too will pass!
I am the parent of 3 wonderful kids – Sam (21), Lucy (19) and Mac (16). Sam has autism. He is quite high functioning, although the skills and abilities that are prominent today were not always so! Sam is indeed the product of countless hours of therapy, patience, diligence, stubbornness and love by numerous people in many varied settings. My experiences while learning to deal with many different agencies, support groups, professionals etc. led me to my current profession. I have been supporting families for nearly 16 years, 8 as a professional.